We are delighted to announce, for FND Awareness Day UK on 25th March 2018 we have partnered with charities and groups across the UK to have a national day of raising awareness of Functional Neurological Disorders (FND), including Non Epileptic Attack Disorder (NEAD).
The FND Awareness Day UK committee consists of ..
FND Action – a charity providing current information in conjunction with a specialist Medical Advisory Board, and support to those diagnosed with Functional Neurological Disorders across the UK.
FND Dimensions – a charity who set up and facilitate meet ups for those diagnosed across the UK.
FND Friends – a charity who provide information and support to those living in the South West.
Friends in NEAD – a group providing information and support to those diagnosed with Non Epileptic Attack Disorder across the UK, and have a large social media presence in helping raise awareness.
Younger FND Fighters – a group which was set up by a handful of young people who had been diagnosed with FND, who wanted to come together to provide information and support to those of a similar younger age.
Functional Neurological Disorder – a group who were the very first in the UK to set up a peer support group on Facebook, and to date are providing support to 3,000+ members.
Functional Movement Disorder – a group who provide information and support to those diagnosed with Functional Movement Disorders across the UK.
Our theme for awareness day this year will be:
#Voices4FND
We are asking for people to get involved by taking a short video (up to 7 minutes) of themselves talking about any aspect of FND or NEAD. You could be a person who has been diagnosed, a carer, a friend, a medical professional, a service provider, or even just a member of the public who wants to support the cause.
We have also provided some guidance and tips on how to make your videos.
VIDEO GUIDANCE SHEET – DOWNLOAD HERE
Of course, raising awareness on the day does not have to stop at sharing videos! So if you would like to get involved with raising awareness on or around the day, and would like help in doing so or would like us to promote what you are doing, please don’t hesitate to get in touch with us, or email the committee at voices4fnd@gmail.com.
COMMENTS