You may be entitled to claim benefits following your diagnosis. Below are some links that you may find helpful.

Benefits and Grants

A to Z of benefits provided by the Government.

Citizens Advice Bureau

Completing your PIP form provided by Scope.

Factsheets and Guides provided by Disabled Rights UK.

Government Disabled Facilities Grant

How to win a PIP appeal provided by Advice Now.

Personal Independence Payment PIP Government information

The Money Advice Service

Turn2us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.

Disability Rights

You are disabled under the Equality Act 2010 if you have a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities. 

Definition of Disability

Disability Rights UK

Disability Aids

You may find that you need some help with things like walking, housework, bathing etc. In the first instance, speak to your doctor about any problems you are having. Your doctor will be able to refer you to an Occupational Therapist who will assess you and your home to see what you need. Your physiotherapist can help you in regards to choosing walking aids such as sticks. Several charities offer wheelchair rental, such as the Red Cross, should you want a wheelchair just for a day out or a short period of time. There are many stores both online and on your high street that sell various gadgets and devices to make your life easier.

Disability Services

FND Action are members of the Hidden Disabilities Sunflower Scheme, and provide lanyards free of charge to those who have been diagnosed with FND. To order please visit our FND Toolkit page.

Other services available:

AccessAble provides a website that has detailed disability access information to thousands of venues across the UK and the Republic of Ireland, including shops, pubs, restaurants, cinemas, theatres, railway stations, hotels, universities, hospitals and more.

Access Card works like a disability passport. It will assist if reasonable adjustments are needed out in public, and an easier way to support accessing entitled discounts, such as with travel, cinema’s etc.

Blue Badge Scheme helps you park closer to your destination if you are disabled.

CEA Card is a national card scheme developed by UK cinemas. The card entitles you to one free cinema ticket for the person accompanying the card holder and approx. 90% of cinemas will accept the card. You can search on their website to see if it available in your area.

Disabled Persons Railcard allows you and a friend 1/3 off rail fares.

National Disability and Carers Card allows quick and easy visual identification of carers and disabled people to help them show that they may require assistance